Post 1003: things are a little bit normal now…

The boys returned to most of the old routines much more quickly than I expected. One they haven’t returned to is the 1:30 AM feeding schedule. Of course, I’m not encouraging them to. LOL!

I bought groceries this morning. The store has a new electric cart with shopping basket that I used. It made the task doable and fast. I was a bit concerned about all the walking I’d have to do since the store was enlarged recently. I still have to carry the groceries in once I get home, though that was easy enough.

Along with buying groceries, I made my first meals at home since getting back. That was one of the concerns of the people doing my therapy. I’ve made my own meals for years, so this was a snap. I just was a bit more careful about ingredients and ate my potassium blocker before eating, like a good boy. (In this case, the blocker is simple Tums, which I take in fruit flavors. Why not?!)

Andy and Dougy aren’t eating their wet food like I like them to. I put a supplement in the wet food that controls “eye snot”, that goopy eye thing Persians often have. Dougy gets it worst, though he cleans most of it off without help. (It isn’t as grim as hairballs, but it gets close sometimes….!)

I still haven’t resolved my PC issues or how to post new photos. I feel an expensive month coming up.

 

Post 1001: Whew! Getting well is exhausting!

I’m catching up with your comments, slowly.

I managed to accidentally delete one because of the quirky way this laptop does tasks if your mouse accidentally strays over a spot to click to do a task. Well, I  accidentally moved over one that said “Trash” while trying to reply to that person. If you are that person, please write back! [NOTE: They did, and I appreciate it because the comment was thoughtful and cheered me up!]

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Dougy and Andy are much more “chatty” than they were before. I guess they realize they need to speak up or I will go away again. Or they just need an overdose of loving to make up for me being away for such a long, long time. Doesn’t matter. I am glad to give them all the loving them need!

Poor little fellows, though. All that attention they want from me is tiring them out, and both are sleeping while I type this blog. The first night, though, they literally kept me up all night. Now, they are a little less needy, but spend the night climbing on my bed to see how I am or, in Dougy’s case, to lie next to me for a little snuggle. He purrs when he does that.

One thing I’ve noticed about them now: When I pick them up, they both purr. Before, they might purr. Now it is every time! Yeah, they are happy to have me home!

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I still am unable to figure out what the problem is with my PC. I hope to work that out so I can get back to posting new photos of the boys. I don’t kid myself. Most of you read this for the kitty pictures and videos, not to learn about me! [Awwwww! Is Doug having a pity party….?! LOL!]

Also, my lame attempts to put kitty pictures [  =(^+^)=  ] in the blog are in recognition of who the Internet minor cat celebrities are, and I am not one of them!

 

 

Post 1000: Oh dear! I violated Dougy’s space!

I just committed a cardinal sin. I set my laptop down on Dougy’s ottoman!

Out of nowhere, Dougy came running. He hopped up on the ottoman and gave a rigorous scratching to the battle scared fabric.

I got your message, Buster: “The ottoman is off limits to everyone but Dougy!!!”

Hard to believe this sweet little Persian guy, usually so full of good will, this pussycat can be so aggressively, obsessively possessive of the ottoman, yet that’s the way it is on Lane 2. Dougy’s ottoman. No trespassing.

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For those who don’t follow me elsewhere, I’ve had problems getting on the Internet on my PC this first day back from hospitalization and rehabilitation. Unfortunately, my laptop is of the stupid variety. It isn’t set up to handle graphics chores.

(“Aw…!He just told us there’d be no new Dougy and Andy photos till he works out the technical glitch in his PC!”)

I did want to resume my blog as soon as possible on getting back, however, because I’ve a lot to tell you. First and foremost, as a weggie (a person diagnosed with Wegener’s granulomatosis, not an underwear waistband puller..!), diagnosed in 2003, I know the disease is for a lifetime: There is no cure.

I also know, as a weggie,that it can go into remission as it did in my case in 2005. Some weggies never know a time when their case is in remission. I was lucky and had several years that were active Wegener’s free.

But! But, it always is there, lurking behind the symptoms of other diseases. That is what the doctors at University Hospital (Denver) feel happened to me.

A couple months leading up to the week I became breathless and weak, I had a nondescript malaise, let’s call it, nothing alarming, just “there”. I didn’t feel really bad, yet I wasn’t 100% OK either.

I wasn’t alarmed.

Perhaps I should have  been. The doctors feel an undiagnosed Wegener’s flare wiped out what kidney function the December 2003-May 2005 didn’t manage to do. Now, I will need dialysis three times a week. It doesn’t hurt. It’s just time-consuming: Four hours at a shot! It can be more or less that, depending on catheter function or need.

I tell you this because it is true. I don’t mean to depress you. I mean, this happened to me yet I am basically a happy, positive person. Let me tell you a little story about how I handled the news I was going to have to go on dialysis.

While at the University Hospital (Denver), several teams of doctors visited me each day, including one who’d been among the doctors who visited me daily in 2004. I was known to be a weggie, so the first thing they had to determine was whether my condition was Wegener’s granulomatosis or not.

No evidence of active Wegener’s showed up, but the signs were my kidneys had failed. (Of course, it was no secret to me because I couldn’t urinate!)

One by one, the doctors and interns, in pairs, came to report their findings to me. Each told a bit more of the story, but I knew where it was leading.

Finally, the nephrologist came by. The young doctor with him was quiet. The older doctor seemed uncomfortable or hesitant to give me the bad news.

“I have good news and I have bad news,” he said finally. The good news was it wasn’t Wegener’s I had, and you already know – just as I did! – what the bad news was: I had end term kidney disease. I would require dialysis in practical terms, many life changes in food eaten, and so on.

I sat on my bed in my hospital gown listening to what the doctor said. When he was finished (and clearly relieved I seemed to be taking it well), I said, “Doctor, you don’t have to worry about scaring the pants off of me because [comedic pause] I’m not wearing any.”

I got them both to laugh!

I tell you that story because I don’t want you to feel sorry for me. I’ve had worse news from doctors after all, like when I learned I was a weggie.

My doctor came to my room and explained that my symptoms suggested one of three possibilities. He ticked off why two seemed less likely than the third, then said I most likely had Wegener’s granulomatosis and that I would be dead within two years.

On the third anniversary of the prediction of a two year life expectancy, I reminded my doctor of what he told me. “That sounds like the sort of thing I’d say,” he said. He actually was a very good doctor, one I still admire and respect immensely.

But when it comes to deadeye predictions, there are many factors that affect the outcome: Efficacy of treatment; patient’s attitude; the course of the disease and what stage it was caught at; faith; who knows?

The short of it (said he ironically), I will thrive and survive. I’m pigheaded that way.

Post 800: a damn nuisance, but things turned out just fine!

Andy seemed unusually interested in me this morning while he watched me from the top of the computer.

Andy was very curious. Was it the Egg McMuffin or me he was fascinated by? We'll never know!

Andy was very curious. Was it the Egg McMuffin or me he was fascinated by? We’ll never know!

Maybe it was all the stuff I took out of my billfold. Seems I’d lost it yesterday, did a panic, cancelled credit cards, contacted the police, cancelled my museum duties so I could search for it while the trail was hot…or not so cold, since I had no idea how long it’s been since it went missing.

What a damn nuisance! The only good thing seemed to be the license examiners come to my town Thursdays and Fridays, so I could take care of applying for a new driver’s license the day after I discovered the billfold missing. Though you can apply for replacements on-line, you wait 20 days for it to come, and I couldn’t wait that long for a license!

There is limited public transportation here. You call for a ride, they come, and eventually you get where you are going. It’s a matter of knowing how these things work. I’m used to getting into a car, taking care of business, and being done with it in short order.

Lost several months ago and found yesterday...in my car, barely sticking out near the driver's side  seat track.

Lost several months ago and found yesterday…in my car, barely sticking out near the driver’s side seat track.

The police station woman didn’t encourage me to drive without a license to get to the DMV office today, but I decided I’d risk it. At worse, in the mile drive I might, might pass a police cruiser, but more likely I’d safely get there, license or not. I have a clean driving record.

I’m 67, have driven since I got a learner’s permit at 15 1/2, and in all that time I’ve been stopped once in South Dakota (they were checking local cars for something, so sent me on with a wave…) and once in Nebraska (my idiot boss made me take the company van to drive him to the airport in the next town even though we both knew a headlight was broken out, courtesy of a Nebraska Department of Roads dump truck that “tossed” gravel at the van when someone else was driving it; I got a “fix it” ticket, which was done the same day and should have been done before I got the van in the first place. I was pissed!).

Must have been the Egg McMuffin because he went over to his blue carrier perch on the settee after I finished eating the food.

Must have been the Egg McMuffin because he went over to his blue carrier perch on the settee after I finished eating the food.

Cancelling three credit cards was a revelation. Chase VISA was a nightmare to deal with, with automated menus offering several choices, including one where I was asked to punch in the first three letters of a password. Fine, except I have a primitive flip phone. Two of three letters in the password were the first letter possible for the key concerned. The third letter required punching the key twice to get to the correct letter, which is to say, the automated Chase system mistook for the first letter, not the second.

I am a life member of several organizations, and I didn't look forward to getting these replaced!

I am a life member of several organizations, and I didn’t look forward to getting these replaced!

Follow that? I was yelling obscenities at a machine before I finally got a human. The human noted I’d be able to take a short survey after we took care of our business. I wisely hung up rather than tell them just how I feel.

The 1st National Bank of Omaha card was a little less unfriendly to cancel and arrange for a new card, and the American Express process was simple, fast, all on-line, and offered the fastest replacement time – two days! The others assured me I could see a card in one business week.

As fascinating as I was, Andy had other priorities!

As fascinating as I was, Andy had other priorities!

And the lost billfold? This morning, while putting on my light jacket to leave for the DMV, I felt a lump in the left sleeve, an odd lump…! Yes, somehow my billfold ended up in the sleeve lining. Oddly enough, it was still in the pocket I usually put it in, and the pocket was what was stuffed…JEEZ! After all the fuss, then, I still had everything, but was getting all new credit cards. I didn’t have to go to the DMV (illegally driving there) I’d got ready to go to, and I had the added bonus of finding that lost car key!

This business was a damn nuisance, but things turned out just fine!

Post 755: cramps my style…

Today’s word is “vicissitude”.

One of the vicissitudes of life I deal with is painful hand cramps. I just talked on the telephone with an old friend, perhaps a 15 minute chat, and now I’m having cramps in the hand that held the cellphone.

“Live long and prosper…~?

I can’t move my hand that way normally, but it locks into this “Star Trek”/ Mr. Spock hand greeting cramp any time I use my hand in certain ways. It’s one bitch of a vicissitude, and it is painful as heck!

OUCH!